Programa de Neuroinmunologia- IDIBAPS


First Annual Sys4MS Consortium Meeting

During the meeting the members of the Consortium took stock of the work carried out during the first year of the project and discussed the activities to be undertaken in the next stage of the project. Special attention was paid to revise the content of the database in which the clinical data has been deposited and to the next steps required to include the "omics", imaging and clinical information in the data base by the end of the year.

The meeting was also attended by Stig S0raa, former president of the Oslo MS Association, and Eva HOlli, adviser from the Norwegian MS Society. They both delivered inspirational talks regarding the activities and successes of these organizations. Their valuable input and insight was appreciated given that collaboration with Patient's Associations is of particular value for the Sys4MS Consortium. Indeed, it was agreed to coordinate between the patient organizations in the distinct countries of the project's participants and to attempt to produce a publication reflecting the positions and the needs of each party, exploring the ways that they can better interact to the benefit of both.